TITLE:
Problematic Access to Care for People with Sickle Cell Disease in Guinea: Case of the SOS DREPANO Center in Conakry
AUTHORS:
Diakité Mamady, Bangoura Mariama, Condé Abdoulaye, Doukouré Aboubacar Sidiki, Camara Amadou Sekou, Diallo Abdoul Goudousy, Kouyaté Fodé, Dambakaté Alhassane, Oularé Ansoumane, Camara Saidouba Chérif, Kanté Ansoumane Sayon
KEYWORDS:
Sickle Cell Disease, Soins, Accessibility, Difficulty, Guinea
JOURNAL NAME:
Open Journal of Blood Diseases,
Vol.15 No.3,
July
18,
2025
ABSTRACT: Introduction: Sickle cell disease is a hereditary disease associated with a wide range of complications that pose enormous obstacles to care. Dans cette étude, il était question d’évaluater les difficulties d’accessibilité aux soins chez les patients suffering from sickle cell disease in Guinea. Methods: This is a transversal study, with a descriptive aim of three (3) months going from December 15, 2023 to March 15, 2024 at the SOS DREPANO Center in Conakry. Our study population consisted of all patients and/or their tutors who received external consultation and/or were hospitalized and responded to our selection criteria, as well as all health providers who consented to the study. Results: The study allowed us to determine the types of care received by patients in the critical phase and in the inter-critical phase, but also the different obstacles and limits to health care. Thus, financial accessibility, access to medicines, the cost of medical services, administrative barriers, the knowledge and attitudes of providers, the lack of medical equipment, the obstacles linked to the disease and the person... were so many obstacles reported by our respondents. Conclusion: Sickle cell patients faced countless obstacles to receiving health care that it was urgent to identify in order to improve their care.