Bernal, M., Haro, J.M., Bernert, S., Brugha, T., de Graaf, R., Bruffaerts, R., Lépine, J.P., de Girolame, G., Vilagut, G., Gasquet, I., Torres, J.V., Kovess, V., Heider, D., Neeleman, J., Kessler, R., Alonso, J. and the ESEMED/MHEDEA Investigators. (2007) Risk Factors for Suicidality in Europe: Results from the ESEMED Study. Journal of Affective Disorders, 101, 27-34. http://dx.doi.org/10.1016/j.jad.2006.09.018

has been cited by the following article:

• TITLE: Quality of Life and Psychological Distress in Women with Mayer-Rokitansky-Küster-Hauser Syndrome and Individuals with Complete Androgen Insensitivity Syndrome

  AUTHORS: Kerstin Krupp, Maike Fliegner, Franziska Brunner, Sara Brucker, Katharina Rall, Hertha Richter-Appelt

  KEYWORDS: Mental Health, Quality of Life, Disorders of Sex Development (DSD), Mayer-Rokitansky-Küster-Hauser Syndrome (MRKHS), Complete Androgen Insensitivity Syndrome (CAIS)

  JOURNAL NAME: Open Journal of Medical Psychology, Vol.3 No.3, April 2, 2014

  ABSTRACT: Purpose: This study examines quality of life and psychological distress in individuals with Mayer-Rokitansky-Küster-Hauser Syndrome (MRKHS) and Complete Androgen Insensitivity Syndrome (CAIS), two syndromes belonging to the field of “disorders of sex development”. Methods: Fifty women with MRKHS and eleven individuals with CAIS participated. The German versions of the World Health Organization Quality of Life Questionnaire (short version, WHOQOL-Bref), the Brief Symptom Inventory (BSI), and the Patient Health Questionnaire (PHQ-D) were used as standardized instruments to measure quality of life and psychopathology. Additional questions concerning demographic variables and suicidality were included. Results: In both patient samples examined, general quality of life reported was in the average range (CAIS: mean z-score = ﹣0.43, SD = 1.05; MRKHS: mean z-score = ﹣0.11, SD = 1.06). The standardized instrument assessment revealed increased psychological distress (proportion of clinical cases according to the BSI: CAIS: 54.5%; MRKHS: 55.1%). A correlation between psychological distress and time span from first suspicion to diagnosis was found in women with MRKHS (Spearman’s rho = 0.35, p = 0.018). Conclusions: The results illustrate the importance of individualised and thorough diagnostics when dealing with patients with MRKHS or CAIS. Psychological distress might be an issue for these individuals and therefore should be considered in treatment and counselling.