[1]
|
Coster, W. and Alunkal-Khetani, M. (2008) Measuring Participation of Children with Disabilities: Issues and Challenges. Disability and Rehabilitation, 30, 639-648.
|
[2]
|
Imms, C. (2008) Children with Cerebral Palsy Participate: A Review of the Literature. Disability and Rehabilitation, 30, 1867-1884. http://dx.doi.org/10.1080/09638280701673542
|
[3]
|
Law, M. (2002) Enhancing Participation. Physical & Occupational Therapy in Pediatrics, 22, 103.
http://dx.doi.org/10.1080/J006v22n01_01
|
[4]
|
Simeonsson, R.J., Carlson, D., Huntington, G.S., Sturtz-McLillen, J. and Lytle-Brent, J. (2001) Students with Disabilities: ANational Survey of Participation in School Activities. Disability and Rehabilitation, 23, 49-63.
http://dx.doi.org/10.1080/096382801750058134
|
[5]
|
Fougeyrollas, P., Cloutier, R., Bergeron, H., Coté, J. and St-Michel, G. (1999) Quebec Classification: Disability Creation Process. International Network on Disability Creation Process-Canadian Society on International Classification of Impairments, Disabilities and Handicaps, INDCP/CSICIDH, Quebec City.
|
[6]
|
Ravaud, J.F. and Fougeyrollas, P. (2005) Le concept de handicap et les classifications internationale. La convergence progressive des positions franco-québécoises. Santé, Solidarité et Société, 25, 121-127.
|
[7]
|
Noonan, V.K., et al. (2009) Comparing the Content of Participation Instruments Using the International Classification of Functioning, Disability and Health. Healthand Quality of Life Outcomes, 7, 93.
http://dx.doi.org/10.1186/1477-7525-7-93
|
[8]
|
Fougeyrollas, P. (2010) La funambule, le fil et la toile. Transformations réciproques du sens du handicap. Collection Sociétés, cultures et santé. Les Presses de l’Université Laval, Quebec City.
|
[9]
|
Fougeyrollas, P. (2012) Social Participation. In: Stone, J.H. and Blouin, M., Eds. International Encyclopedia of Rehabilitation, University of Buffalo, Buffalo, 9 pp. http://cirrie.buffalo.edu/encyclopedia/pdf/en/social_participation.pdf
|
[10]
|
Lepage, C., Noreau, L., Bernard, M.P. and Fougeyrollas, P. (1998) Profile of Handicap Situations in Children with Cerebral Palsy. Scandinavian Journal of Rehabilitation Medicine, 30, 263-272.
http://dx.doi.org/10.1080/003655098444011
|
[11]
|
Noreau, L., Lepage, C., Boissiere, L., Picard, R., Fougeyrollas, P., Mathieu, J., et al. (2007) Measuring Participation in Children with Disabilities Using the Assessment of Life Habits. Developmental Medicine and Child Neurology, 49, 666-671. http://dx.doi.org/10.1111/j.1469-8749.2007.00666.x
|
[12]
|
Chan, H.S.S., Lau, P.H.B., Fong, K.H., Poon, D. and Lam, C.C.C. (2005) Neuroimpairment, Activity Limitation, and Participation Restriction among Children with Cerebral Palsy in Hong Kong. Hong Kong Medical Journal, 11, 342-350.
|
[13]
|
Erikson, L., Welander, J. and Granlund, M. (2007) Participation in Everyday School Activities for Children with and without Disabilities. Journal of Developmental and Physical Disabilities, 19, 485-502.
http://dx.doi.org/10.1007/s10882-007-9065-5
|
[14]
|
Schenker, R., Coster, W. and Parush, S. (2005) Participation and Activity Performance of Students with Cerebral Palsy within the School Environment. Disability and Rehabilitation, 27, 539-552.
http://dx.doi.org/10.1080/09638280400018437
|
[15]
|
Shikako-Thomas, K., Majnemer, A., Law, M. and Lach, L. (2008) Determinants of Participation in Leisure Activities in Children and Youth with Cerebral Palsy: Systematic Review. Physical & Occupational Therapy in Pediatrics, 28, 155-169. http://dx.doi.org/10.1080/01942630802031834
|
[16]
|
Parkes, J., McCullough, N. and Madden, A. (2010) To What Extent Do Children with Cerebral Palsy Participate in Everyday Life Situations? Health & Social Care in the Community, 18, 304-315.
|
[17]
|
Donkervoort, M., Roebroeck, M., Wiegerink, D., van der Heijden-Maessen, H., Stam, H., et al. (2007) Determinants of Functioning of Adolescents and Young Adults with Cerebral Palsy. Disability and Rehabilitation, 29, 453-463.
http://dx.doi.org/10.1080/09638280600836018
|
[18]
|
Imms, C., Reilly, S., Carlin, J. and Dodd, K. (2008) Diversity of Participation in Children with Cerebral Palsy. Developmental Medicine and Child Neurology, 50, 363-369. http://dx.doi.org/10.1016/j.ejpn.2008.03.005
|
[19]
|
Michelsen, S.I., Flachs, E.M., Uldall, P., Eriksen, E.L., McManus, V., Parkes, J., et al. (2009) Frequency of Participation of 8-12-Year-Old Children with Cerebral Palsy: A Multi-Centre Cross-Sectional European Study. European Journal of Paediatric Neurology, 13, 165-177. http://dx.doi.org/10.1016/j.ejpn.2008.03.005
|
[20]
|
Law, M., King, G., King, S., Kertoy, M., Hurley, P., Rosenbaum, P., et al. (2006) Patterns of Participation in Recreational and Leisure Activities among Children with Complex Physical Disabilities. Developmental Medicine and Child Neurology, 48, 337-342. http://dx.doi.org/10.1017/S0012162206000740
|
[21]
|
Morris, C., Kurinczuk, J.J., Fitzpatrick, R. and Rosenbaum, P.L. (2006) Do the Abilities of Children with Cerebral Palsy Explain Their Activities and Participation? Developmental Medicine and Child Neurology, 48, 954-961.
|
[22]
|
Kerr, C., McDowell, B. and McDonough, S. (2006) The Relationship Between Gross Motor Function and Participation Restriction in Children with Cerebral Palsy: An Exploratory Analysis. Child: Care, Health and Development, 33, 22-27. http://dx.doi.org/10.1111/j.1365-2214.2006.00634.x
|
[23]
|
Bedell, G. and Coster, W. (2008) Measuring Participation of School-Aged Children with Traumatic Brain Injuries: Considerations and Approaches. Journal of Head Trauma Rehabilitation, 23, 220-229.
http://dx.doi.org/10.1097/01.HTR.0000327254.61751.e7
|
[24]
|
Bedell, M.G., Haley, M.S., Coster, J.W. and Smith, W.K. (2002) Participation Readiness at Discharge from Inpatient Rehabilitation in Children and Adolescents with Acquired Brain Injuries. Pediatric Rehabilitation, 5, 102-116.
|
[25]
|
Bedell, M.G. (2004) Developing a Follow-Up Survey Focused on Participation of Children and Youth with Acquired Brain Injuries After Discharge from Inpatient Rehabilitation. NeuroRehabilitation, 19, 191-205.
|
[26]
|
Bedell, M.G., Cohn, E.S. and Dumas, H.M. (2005) Exploring Parents’ Use of Strategies to Promote Social Participation of School-Age Children with Acquired Brain Injuries. American Journal of Occupational Therapy, 59, 273-284.
http://dx.doi.org/10.5014/ajot.59.3.273
|
[27]
|
Dumas, H.M., Bedell, G.M. and Shannon-Hamill, M. (2003) Strategies to Promote Activity and Participation in Children and Youths with Acquired Brain Injuries. International Journal of Rehabilitation Research, 26, 303-308.
http://dx.doi.org/10.1097/00004356-200312000-00008
|
[28]
|
Bedell, M.G. and Dumas, H.M. (2004) Social Participation of Children and Youth with Acquired Brain Injuries Discharged from Inpatient Rehabilitation: A Follow-Up Study. Brain Injury, 18, 65-82.
http://dx.doi.org/10.1080/0269905031000110517
|
[29]
|
Anaby, D., Law, M., Steven, H. and Dematteo, C. (2012) Predictors of Change in Participation Rates Following Acquired Brain Injury: Results of a Longitudinal Study. Developmental Medicine and Child Neurology, 54, 339-346.
http://dx.doi.org/10.1111/j.1469-8749.2011.04204.x
|
[30]
|
Foo, W.S., Galvin, J. and Olsen, J. (2012) Participation of Children with ABI and the Relationship with Discharge Functional Status. Developmental Neurorehabilitation, 15, 1-12. http://dx.doi.org/10.3109/17518423.2011.623142
|
[31]
|
Law, M., Anaby, D., Dematteo, C. and Hanna, S. (2011) Participation Patterns of Children with Acquired Brain Injury. Brain Injury, 25, 587-595. http://dx.doi.org/10.3109/02699052.2011.572945
|
[32]
|
Van Tol, E., Gorter, J.W., DeMatteo, C. and Meester-Delver, A. (2011) Participation Outcomes for Children with Acquired Brain Injury: A Narrative Review. Brain Injury, 25, 1279-1287.
http://dx.doi.org/10.3109/02699052.2011.613089
|
[33]
|
Mancini, M.C., Coster, W.J., Trombly, C.A. and Heeren, T.C. (2000) Predicting Elementary School Participation in Children with Disabilities. Archives of Physical Medicine and Rehabilitation, 81, 339-347.
http://dx.doi.org/10.1016/S0003-9993(00)90081-9
|
[34]
|
Anderson, V., Brown, S., Newitt, H. and Hoile, H. (2009) Educational, Vocational, Psychosocial, and Quality-of-Life Outcomes for Adult Survivors of Childhood Traumatic Brain Injury. Journal of Head Trauma Rehabilitation, 24, 303-312. http://dx.doi.org/10.1097/HTR.0b013e3181ada830
|
[35]
|
Anderson, V., Brown, S., Newitt, H. and Hoile, H. (2011) Long-Term Outcome from Childhood Traumatic Brain Injury: Intellectual Ability, Personality, and Quality of Life. Neuropsychology, 25, 176-184.
http://dx.doi.org/10.1037/a0021217
|
[36]
|
Anderson, V.A., Catroppa, C., Dudgeon, P., Morse, S.A., Haritou, F. and Rosenfeld, J.V. (2006) Understanding Predictors of Functional Recovery and Outcome 30 Months Following Early Childhood Head Injury. Neuropsychology, 20, 42-57. http://dx.doi.org/10.1037/0894-4105.20.1.42
|
[37]
|
McConachie, H., Colver, A.F., Forsyth, R.J., Jarvis, S.N. and Parkinson, K.N. (2006) Participation of Disabled Children: How Should It Be Characterised and Measured? Developmental Medicine and Child Neurology, 28, 1157-1164.
|
[38]
|
Morris, C., Kurinczuk, J.J. and Fitzpatrick, R. (2005) Child or Family Assessed Measures of Activity Performance and Participation for Children with Cerebral Palsy: A Structured Review. Child: Care, Health and Development, 31, 397-407. http://dx.doi.org/10.1111/j.1365-2214.2005.00519.x
|
[39]
|
Noreau, L., Fougeyrollas, P. and Vincent, C. (2002) The LIFE-H: Assessment of the Quality of Social Participation. Technology and Disability, 14, 113-118.
|
[40]
|
Sakzewski, L., Boyd, R. and Ziviany, J. (2007) Clinimetric Properties of Participation Measures for 5-13-Year-Old Children with Cerebral Palsy: A Systematic Review. Developmental Medicine and Child Neurology, 48, 232-240.
http://dx.doi.org/10.1111/j.1469-8749.2007.00232.x
|
[41]
|
Resnik, L. and Plow, M.A. (2009) Measuring Participation as Defined by the International Classification of Functioning, Disability and Health: An Evaluation of Existing Measures. Scandinavian Journal of Rehabilitation Medicine, 90, 856-866.
|
[42]
|
Donders, J. and Ballard, E. (1996) Psychological Adjustment Characteristics of Children before and after Moderate to Severe Traumatic Brain Injury. Journal of Head Trauma Rehabilitation, 11, 67-73.
http://dx.doi.org/10.1097/00001199-199606000-00010
|
[43]
|
Fougeyrollas, P., et al. (2003) Assessment of Life Habits (LIFE-H for Children 5-13, 1.0) Adapted for Children 5 to 13 years, Short Form (French Version). International Network for Disability Creation Process, INDCP, RIPPH/SCCIDIH, Quebec City.
|
[44]
|
Boucher, N., Dumas, F., Maltais, D.M. and Richards, C.L. (2010) The Influence of Selected Personal and Environmental Factors on Leisure Activities in Adults with Cerebral Palsy. Disability & Rehabilitation, 32, 1328-1338.
http://dx.doi.org/10.1111/j.1469-8749.2011.04210.x
|
[45]
|
Swaine, B. (2012) Participation Following Pediatric Acquired Brain Injury and Some Inherent Problems with Outcome Studies. Developmental Medicine and Child Neurology, 54, 296-297.
http://dx.doi.org/10.1111/j.1469-8749.2011.04210.x
|
[46]
|
Max, E.J., Lansing, A.E., Koele, S.L., Castillo, C.S., Bokura, H., Schachar, R., et al. (2004) Attention Deficit Hyperactivity Disorder in Children and Adolescents Following Traumatic Brain Injury. Developmental Neuropsycholology, 25, 159-177.
|
[47]
|
Woodward, H., Winterhalther, K., Donders, J., Hackbarth, R., Kuldanek, A. and Sanfilippo, D. (1999) Prediction of Neurobehavioral Outcome 1-5 Years Post Pediatric Traumatic Head Injury. Journal of Head Traumatic Rehabilitation, 14, 351-359. http://dx.doi.org/10.1097/00001199-199908000-00004
|
[48]
|
Jaffe, M.K., Lincoln-Polissar, N., Fay, C.G. and Liao, S. (1995) Recovery Trends over Three Years Following Pediatric Traumatic Brain Injury. Archives of Physical Medicine and Rehabilitation, 76, 17-26.
http://dx.doi.org/10.1016/S0003-9993(95)80037-9
|
[49]
|
Katia, S., Normand, B. and Céline, L. (2014) Current Needs, the Future of Adolescents and Young Adults Having Sustained a Moderate or Severe Traumatic Brain Injury (TBI) and the Potential of Their Social Participation. Open Journal of Therapy and Rehabilitation, 2, 45-55. http://dx.doi.org/10.4236/ojtr.2014.21009
|
[50]
|
Sylvestre, A., Nadeau, L., Charron, L., Larose, N. and Lepage, C. (2013) Social Participation by Children with Developmental Coordination Disorder Compared to Their Peers. Disability & Rehabilitation, 35, 1814-1820.
http://dx.doi.org/10.3109/09638288.2012.756943
|
[51]
|
Young, N.L., Yoshida, K.K., Williams, J.I., Bombardier, C. and Wright, J.G. (1995) The Role of Children in Reporting Their Physical Disability. Archives of Physical Medicine and Rehabilitation, 76, 913-918.
http://dx.doi.org/10.1016/S0003-9993(95)80066-2
|
[52]
|
Prigatano, P.G. and Gray, J. (2008) Parental Perspectives on Recovery and Social Reintegration after Pediatric Traumatic Brain Injury. Journal of Head Trauma Rehabililitation, 23, 378-387.
http://dx.doi.org/10.1097/01.HTR.0000341433.67251.01
|
[53]
|
Erhart, M., Ellert, U., Kurth, B.M. and Ravens-Sieberer, U. (2009) Measuring Adolescents’ HRQoL via Self Reports and Parent Proxy Reports: An Evaluation of the Psychometric Properties of both Versions of the KINDL-R Instrument. Health and Quality of Life Outcomes, 7, 77. http://dx.doi.org/10.1186/1477-7525-7-77
|