[1]
|
Alves, G., Forsaa, E.B., Pedersen, K.F., et al. (2008) Epidemiology of Parkinson’s Disease. Journal of Neurology, 255, 18-32. http://dx.doi.org/10.1007/s00415-008-5004-3
|
[2]
|
Ahlskog, J.E. and Muenter, M.D. (2001) Frequency of Levodopa-Related Dyskinesias and Motor Fluctuations as Estimated from the Cumulative Literature. Movement Disorders, 16, 448-458. http://dx.doi.org/10.1002/mds.1090
|
[3]
|
Obeso, J.A., Olanow, C.W. and Nutt, J.G. (2000) Levodopa Motor Complications in Parkinson’s Disease. Trends in Neurosciences, 23, S2-S7. http://dx.doi.org/10.1016/S1471-1931(00)00031-8
|
[4]
|
Witjas, T., Kaphan, E., Azulay, J.P., et al. (2002) Nonmotor Fluctuations in Parkinson’s Disease: Frequent and Disabling. Neurology, 59, 408-413. http://dx.doi.org/10.1212/WNL.59.3.408
|
[5]
|
Abendroth, M., Lutz, B.J. and Young, M.E. (2012) Family Caregivers’ Decision Process to Institutionalize Persons with Parkinson’s Disease: A Grounded Theory Study. The International Journal of Nursing Studies, 49, 445-454. http://dx.doi.org/10.1016/j.ijnurstu.2011.10.003
|
[6]
|
McLennon, S.M., Habermann, B. and Davis, L.L. (2010) Deciding to Institutionalize: Why Do Family Members Cease Caregiving at Home? Journal of Neuroscience Nursing, 42, 95-103. http://dx.doi.org/10.1097/JNN.0b013e3181ce5c45
|
[7]
|
Findley, L.J. (2007) The Economic Impact of Parkinson’s Disease. Parkinsonism & Related Disorders, 13, S8-S12. http://dx.doi.org/10.1016/j.parkreldis.2007.06.003
|
[8]
|
Vossius, C., Nilsen, O.B. and Larsen, J.P. (2009) Parkinson’s Disease and Nursing Home Placement: The Economic Impact of the Need for Care. European Journal of Neurology, 16, 194-200. http://dx.doi.org/10.1111/j.1468-1331.2008.02380.x
|
[9]
|
Martinez-Martin, P., Arroyo, S., Rojo-Abuin, J.M., et al. (2008) Burden, Perceived Health Status, and Mood among Caregivers of Parkinson’s Disease Patients. Movement Disorders, 23, 1673-1680. http://dx.doi.org/10.1002/mds.22106
|
[10]
|
Lau, K.M. and Au, A. (2011) Correlates of Informal Caregiver Distress in Parkinson’s Disease: A Meta-Analysis. Clinical Gerontologist, 34, 117-131. http://dx.doi.org/10.1080/07317115.2011.539521
|
[11]
|
McRae, C., Sherry, P. and Roper, K. (1999) Stress and Family Functioning among Caregivers of Persons with Parkinson’s Disease. Parkinsonism & Related Disorders, 5, 69-75. http://dx.doi.org/10.1016/S1353-8020(99)00012-7
|
[12]
|
Kelly, D.H., McGinley, J.L., Huxham, F.E., et al. (2012) Health-Related Quality of Life and Strain in Caregivers of Australians with Parkinson’s Disease: An Observational Study. BMC Neurology, 12, 57. http://dx.doi.org/10.1186/1471-2377-12-57
|
[13]
|
Cousins, R., Davies, A.D.M., Turnbull, C.J. and Playfer, J.R. (2002) Assessing Caregiving Distress: A Conceptual Analysis and a Brief Scale. British Journal of Clinical Psychology, 41, 387-403. http://dx.doi.org/10.1348/014466502760387506
|
[14]
|
Van Durme, T., Macq, J., Jeanmart, C. and Gobert, M. (2012) Tools for Measuring the Impact of Informal Caregiving of the Elderly: A Literature Review. International Journal of Nursing Studies, 49, 490-504. http://dx.doi.org/10.1016/j.ijnurstu.2011.10.011
|
[15]
|
Deeken, J.F., Taylor, K.L., Mangan, P., et al. (2003) Care for the Caregivers: A Review of Self-Report Instruments Developed to Measure the Burden, Needs, and Quality of Life of Informal Caregivers. Journal of Pain and Symptom Management, 26, 922-953. http://dx.doi.org/10.1016/S0885-3924(03)00327-0
|
[16]
|
Peters, M. (2014) Quality of Life and Burden in Caregivers for Patients with PD. Focus on Parkinson’s Disease, 24, 44-48.
|
[17]
|
Martinez-Martin, P., Rodriguez-Blazquez, C. and Forjaz, M.J. (2012) Quality of Life and Burden in Caregivers for Patients with Parkinson’s Disease: Concepts, Assessment and Related Factors. Expert Review of Pharmacoeconomics & Outcomes Research, 12, 221-230. http://dx.doi.org/10.1586/erp.11.106
|
[18]
|
Greenwell, K., Van Wersch, A. and Walker, R. (2013) Determinants of Psychosocial Impact of Being a Carer of People Living with Parkinson’s Disease: A Systematic Review. Journal of Parkinson’s Disease, 3, 173.
|
[19]
|
Liberati, A., Altman, D.G., Tetzlaff, J., et al. (2009) The PRISMA Statement for Reporting Systematic Reviews and Meta-Analyses of Studies That Evaluate Healthcare Interventions: Explanation and Elaboration. BMJ, 339, b2700. http://dx.doi.org/10.1136/bmj.b2700
|
[20]
|
Green, S.B. (1991) How Many Subjects Does It Take to Do a Regression Analysis. Multivariate Behavioral Research, 26, 499-510. http://dx.doi.org/10.1207/s15327906mbr2603_7
|
[21]
|
Boland, A. and Dickson, R. (2014) Doing a Systematic Review: A Student’s Guide. SAGE Publications Ltd., London.
|
[22]
|
Berg, R.C. and Underland, V. (2013) Obstetric Consequences of Female Genital Mutilation/Cutting (FGM/C). A Systematic Review. Norwegian Knowledge Centre for the Health Services (NOCK), Oslo.
|
[23]
|
Jack, K., McLean, S.M., Moffett, J.K. and Gardiner, E. (2010) Barriers to Treatment Adherence in Physiotherapy Outpatient Clinics: A Systematic Review. Manual Therapy, 15, 220-228. http://dx.doi.org/10.1016/j.math.2009.12.004
|
[24]
|
Polit, D.F. and Beck, C.T. (2004) Nursing Research: Principles and Methods. 7th Edition, Lippincott Williams & Wilkins, Philadelphia.
|
[25]
|
Lyons, K.S., Stewart, B.J., Archbold, P.G. and Carter, J.H. (2009) Optimism, Pessimism, Mutuality, and Gender: Predicting 10-Year Role Strain in Parkinson’s Disease Spouses. Gerontologist, 49, 378-387. http://dx.doi.org/10.1093/geront/gnp046
|
[26]
|
Carter, J.H., Lyons, K.S., Stewart, B.J., et al. (2010) Does Age Make a Difference in Caregiver Strain? Comparison of Young versus Older Caregivers in Early-Stage Parkinson’s Disease. Movement Disorders, 25, 724-730. http://dx.doi.org/10.1002/mds.22888
|
[27]
|
Carter, J.H., Stewart, B.J., Archbold, P.G., et al. (1998) Living with a Person Who Has Parkinson’s Disease: The Spouse’s Perspective by Stage of Disease. Movement Disorders, 13, 20-28. http://dx.doi.org/10.1002/mds.870130108
|
[28]
|
Carter, J.H., Stewart, B.J., Lyons, K.S. and Archbold, P.G. (2008) Do Motor and Nonmotor Symptoms in PD Patients Predict Caregiver Strain and Depression? Movement Disorders, 23, 1211-1216. http://dx.doi.org/10.1002/mds.21686
|
[29]
|
Aarsland, D., Larsen, J.P., Karlsen, K., et al. (1999) Mental Symptoms in Parkinson’s Disease Are Important Contributors to Caregiver Distress. International Journal of Geriatric Psychiatry, 14, 866-874. http://dx.doi.org/10.1002/(SICI)1099-1166(199910)14:10<866::AID-GPS38>3.0.CO;2-Z
|
[30]
|
Thommessen, B., Aarsland, D., Braekhus, A., et al. (2002) The Psychosocial Burden on Spouses of the Elderly with Stroke, Dementia and Parkinson’s Disease. International Journal of Geriatric Psychiatry, 17, 78-84. http://dx.doi.org/10.1002/gps.524
|
[31]
|
Caap-Ahlgren, M. and Dehlin, O. (2002) Factors of Importance to the Caregiver Burden Experienced by Family Caregivers of Parkinson’s Disease Patients. Aging Clinical and Experimental Research, 14, 371-377. http://dx.doi.org/10.1007/BF03324464
|
[32]
|
Kim, K.S., Kim, B.J., Kim, K.H., et al. (2007) Subjective and Objective Caregiver Burden in Parkinson’s Disease. Daehan Ganho Haghoeji, 37, 242-248.
|
[33]
|
Leiknes, I., Tysnes, O.-B., Aarsland, D. and Larsen, J.P. (2010) Caregiver Distress Associated with Neuropsychiatric Problems in Patients with Early Parkinson’s Disease: The Norwegian ParkWest Study. Acta Neurologica Scandinavica, 122, 418-424. http://dx.doi.org/10.1111/j.1600-0404.2010.01332.x
|
[34]
|
Sarandol, A., et al. (2010) Behavioral Disturbances and Depression of Patients with Parkinson’s Disease Have Significant Impact on Caregivers’ Burden and Depression. Neurology Psychiatry and Brain Research, 16, 91-96.
|
[35]
|
Agrawal, V., Goyal, V., Shukla, G. and Behari, M. (2012) Predictors of Caregivers’ Burden of Parkinson’s Disease in India: Experience of a Tertiary Care Centre in India. Journal of Parkinsonism & Restless Legs, 2012, 59-65.
|
[36]
|
Leroi, I., Harbishettar, V., Andrews, M., et al. (2012) Carer Burden in Apathy and Impulse Control Disorders in Parkinson’s Disease. International Journal of Geriatric Psychiatry, 27, 160-166. http://dx.doi.org/10.1002/gps.2704
|
[37]
|
Martinez-Martin, P., Forjaz, M.J., Frades-Payo, B., et al. (2007) Caregiver Burden in Parkinson’s Disease. Movement Disorders, 22, 924-931. http://dx.doi.org/10.1002/mds.21355
|
[38]
|
Ozdilek, B. and Gunal, D.I. (2012) Motor and Non-Motor Symptoms in Turkish Patients with Parkinson’s Disease Affecting Family Caregiver Burden and Quality of Life. Journal of Neuropsychiatry and Clinical Neurosciences, 24, 478-483. http://dx.doi.org/10.1176/appi.neuropsych.11100315
|
[39]
|
Razali, R., Ahmad, F., Rahman, F.N.A., et al. (2011) Burden of Care among Caregivers of Patients with Parkinson Disease: A Cross-Sectional Study. Clinical Neurology and Neurosurgery, 113, 639-643. http://dx.doi.org/10.1016/j.clineuro.2011.05.008
|
[40]
|
Zarit, S.H., Todd, P.A. and Zarit, J.M. (1986) Subjective Burden of Husbands and Wives as Caregivers: A Longitudinal Study. Gerontologist, 26, 260-266. http://dx.doi.org/10.1093/geront/26.3.260
|
[41]
|
Goldsworthy, B. and Knowles, S. (2008) Caregiving for Parkinson’s Disease Patients: An Exploration of a Stress-Appraisal Model for Quality of Life and Burden. Journals of Gerontology Series B—Psychological Sciences and Social Sciences, 63, P372-P376. http://dx.doi.org/10.1093/geronb/63.6.P372
|
[42]
|
Zarit, S.H., Reever, K.E. and Bach-Peterson, J. (1980) Relatives of the Impaired Elderly: Correlates of Feelings of Burden. Gerontologist, 20, 649-655. http://dx.doi.org/10.1093/geront/20.6.649
|
[43]
|
Zarit, S.H., Orr, N.K. and Zarit, J.M. (1985) The Hidden Victim of Alzheimer’s Disease: Families under Stress. New York University Press, New York.
|
[44]
|
Novak, M. and Guest, C. (1989) Application of a Multidimensional Caregiver Burden Inventory. Gerontologist, 29, 798-803. http://dx.doi.org/10.1093/geront/29.6.798
|
[45]
|
Greene, J.G., Smith, R., Gardiner, M. and Timbury, G.C. (1982) Measuring Behavioural Disturbance of Elderly Demented Patients in the Community and Its Effects on Relatives: A Factor Analytic Study. Age Ageing, 11, 121-126. http://dx.doi.org/10.1093/ageing/11.2.121
|
[46]
|
Archbold, P.G., Stewart, B.J., Greenlick, M.R. and Harvath, T. (1990) Mutuality and Preparedness as Predictors of Caregiver Role Strain. Research in Nursing & Health, 13, 375-384. http://dx.doi.org/10.1002/nur.4770130605
|
[47]
|
Aarsland, D., Bronnick, K., Ehrt, U., et al. (2007) Neuropsychiatric Symptoms in Patients with Parkinson’s Disease and Dementia: Frequency, Profile and Associated Caregiver Stress. Journal of Neurology, Neurosurgery & Psychiatry, 78, 36-42. http://dx.doi.org/10.1136/jnnp.2005.083113
|
[48]
|
Cummings, J.L., Mega, M., Gray, K., et al. (1994) The Neuropsychiatric Inventory: Comprehensive Assessment of Psychopathology in Dementia. Neurology, 44, 2308-2314. http://dx.doi.org/10.1212/WNL.44.12.2308
|
[49]
|
Leroi, I., McDonald, K., Pantula, H. and Harbishettar, V. (2012) Cognitive Impairment in Parkinson Disease: Impact on Quality of Life, Disability, and Caregiver Burden. Journal of Geriatric Psychiatry and Neurology, 25, 208-214. http://dx.doi.org/10.1177/0891988712464823
|
[50]
|
Marsh, L., Williams, J.R., Rocco, M., et al. (2004) Psychiatric Comorbidities in Patients with Parkinson Disease and Psychosis. Neurology, 63, 293-300. http://dx.doi.org/10.1212/01.WNL.0000129843.15756.A3
|
[51]
|
Stella, F., Banzato, C.E., Quagliato, E.M., et al. (2009) Psychopathological Features in Patients with Parkinson’s Disease and Related Caregivers’ Burden. International Journal of Geriatric Psychiatry, 24, 1158-1165. http://dx.doi.org/10.1002/gps.2240
|
[52]
|
Kaufer, D.I., Cummings, J.L., Christine, D., et al. (1998) Assessing the Impact of Neuropsychiatric Symptoms in Alzheimer’s Disease: The Neuropsychiatric Inventory Caregiver Distress Scale. Journal of the American Geriatrics Society, 46, 210-215. http://dx.doi.org/10.1111/j.1532-5415.1998.tb02542.x
|
[53]
|
Robinson, B.C. (1983) Validation of a Caregiver Strain Index. Journals of Gerontology, 38, 344-348. http://dx.doi.org/10.1093/geronj/38.3.344
|
[54]
|
Tanji, H., Koyama, S., Wada, M., et al. (2013) Comparison of Caregiver Strain in Parkinson’s Disease between Yamagata, Japan, and Maryland, The United States. Parkinsonism & Related Disorders, 19, 628-633. http://dx.doi.org/10.1016/j.parkreldis.2013.02.014
|
[55]
|
Thornton, M. and Travis, S.S. (2003) Analysis of the Reliability of the Modified Caregiver Strain Index. Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 58, S127-S132. http://dx.doi.org/10.1093/geronb/58.2.S127
|
[56]
|
Peters, M., Fitzpatrick, R., Doll, H., et al. (2011) Does Self-Reported Well-Being of Patients with Parkinson’s Disease Influence Caregiver Strain and Quality of Life? Parkinsonism & Related Disorders, 17, 348-352. http://dx.doi.org/10.1016/j.parkreldis.2011.02.009
|
[57]
|
Gruetzner, H. (1988) Alzheimer’s: A Caregiver’s Guide and Sourcebook. John Wiley & Sons, New York.
|
[58]
|
Elmstahl, S., Ingvad, B. and Annerstedt, L. (1998) Family Caregiving in Dementia: Prediction of Caregiver Burden 12 Months after Relocation to Group-Living Care. International Psychogeriatrics, 10, 127-146. http://dx.doi.org/10.1017/S1041610298005249
|
[59]
|
Montgomery, R.J.V., Gonyea, J.G. and Hooyman, N.R. (1985) Caregiving and the Experience of Subjective and Objective Burden. Family Relations, 34, 19-26. http://dx.doi.org/10.2307/583753
|
[60]
|
Stull, D.E. (1996) The Multidimensional Caregiver Strain Index (MCSI): Its Measurement and Structure. Journal of Clinical Geropsychology, 2, 175-196.
|
[61]
|
Carod-Artal, F.J., Mesquita, H.M., Ziomkowski, S. and Martinez-Martin, P. (2013) Burden and Health-Related Quality of Life among Caregivers of Brazilian Parkinson’s Disease Patients. Parkinsonism & Related Disorders, 19, 943-948. http://dx.doi.org/10.1016/j.parkreldis.2013.06.005
|
[62]
|
Schrag, A., Hovris, A., Morley, D., et al. (2006) Caregiver-Burden in Parkinson’s Disease Is Closely Associated with Psychiatric Symptoms, Falls, and Disability. Parkinsonism & Related Disorders, 12, 35-41. http://dx.doi.org/10.1016/j.parkreldis.2005.06.011
|
[63]
|
Shin, H., Lee, J.Y., Youn, J., et al. (2012) Factors Contributing to Spousal and Offspring Caregiver Burden in Parkinson’s Disease. Movement Disorders, 27, S311-S311.
|
[64]
|
Calder, S.A., Ebmeier, K.P., Stewart, L., et al. (1991) The Prediction of Stress in Carers: The Role of Behaviour, Reported Self-Care and Dementia in Patients with Idiopathic Parkinson’s Disease. International Journal of Geriatric Psychiatry, 6, 737-742. http://dx.doi.org/10.1002/gps.930061008
|
[65]
|
Oguh, O., Kwasny, M., Carter, J., et al. (2013) Caregiver Strain in Parkinson’s Disease: National Parkinson Foundation Quality Initiative Study. Parkinsonism & Related Disorders, 19, 975-979. http://dx.doi.org/10.1016/j.parkreldis.2013.06.015
|
[66]
|
Kudlicka, A., Clare, L. and Hindle, J.V. (2014) Quality of Life, Health Status and Caregiver Burden in Parkinson’s Disease: Relationship to Executive Functioning. International Journal of Geriatric Psychiatry, 29, 68-76. http://dx.doi.org/10.1002/gps.3970
|
[67]
|
Hoehn, M.M. and Yahr, M.D. (1967) Parkinsonism: Onset, Progression and Mortality. Neurology, 17, 427-442. http://dx.doi.org/10.1212/WNL.17.5.427
|
[68]
|
Schrag, A., Jahanshahi, M. and Quinn, N. (2000) How Does Parkinson’s Disease Affect Quality of Life? A Comparison with Quality of Life in the General Population. Movement Disorders, 15, 1112-1118. http://dx.doi.org/10.1002/1531-8257(200011)15:6<1112::AID-MDS1008>3.0.CO;2-A
|
[69]
|
Fahn, S. and Elton, R.L. (1987) Unified Parkinson’s Disease Rating Scale. In: Fahn, S., Marsden, C., Goldstein, M. and Calne, C., Eds., Recent Developments in Parkinson’s Disease, Macmillan Healthcare Information, Florham Park, 153-163.
|
[70]
|
Marinus, J., Visser, M., Stiggelbout, A.M., et al. (2004) A Short Scale for the Assessment of Motor Impairments and Disabilities in Parkinson’s Disease: The SPES/SCOPA. Journal of Neurology, Neurosurgery, and Psychiatry, 75, 388-395. http://dx.doi.org/10.1136/jnnp.2003.017509
|
[71]
|
Schwab, R.S. and England, A.C. (1969) Projection Technique for Evaluating Surgery in Parkinson’s Disease. In: Billingham, F.H. and Donaldson, M.C., Eds., Third Symposium on Parkinson’s Disease, Churchill Livingstone, Edinburgh, 152-157.
|
[72]
|
Mahoney, F.I. and Barthel, D.W. (1965) Functional Evaluation: The Barthel Index. Maryland State Medical Journal, 14, 61-65.
|
[73]
|
Lawton, M.P. and Brody, E.M. (1969) Assessment of Older People: Self-Maintaining and Instrumental Activities of Daily Living. Gerontologist, 9, 179-186. http://dx.doi.org/10.1093/geront/9.3_Part_1.179
|
[74]
|
Pickering, R.M., Grimbergen, Y.A., Rigney, U., et al. (2007) A Meta-Analysis of Six Prospective Studies of Falling in Parkinson’s Disease. Movement Disorders, 22, 1892-1900. http://dx.doi.org/10.1002/mds.21598
|
[75]
|
Beck, A.T. and Steer, R.A. (1984) Internal Consistencies of the Original and Revised Beck Depression Inventory. Journal of Clinical Psychology, 40, 1365-1367. http://dx.doi.org/10.1002/1097-4679(198411)40:6<1365::AID-JCLP2270400615>3.0.CO;2-D
|
[76]
|
Derogatis, L.R. (1993) The Brief Symptom Inventory (BSI): Administration, Scoring and Procedures Manual. National Computer Systems, Minneapolis.
|
[77]
|
Radloff, L. (1977) The CES-D Scale: A Self-Report Depression Scale for Re-search in the General Population. Applied Psychological Measurement, 1, 385-401. http://dx.doi.org/10.1177/014662167700100306
|
[78]
|
Sheikh, J.I. and Yesavage, J.A. (1986) Geriatric Depression Scale (GDS): Recent Evidence and Development of a Shorter Version. In: Brink, T.L., Ed., Clinical Gerontology: A Guide to Assessment and Intervention, Haworth Press, Binghamton, 165-173.
|
[79]
|
Hamilton, M. (1960) A Rating Scale for Depression. Journal of Neurology, Neurosurgery, and Psychiatry, 23, 56-62. http://dx.doi.org/10.1136/jnnp.23.1.56
|
[80]
|
Zigmond, A.S. and Snaith, R.P. (1983) The Hospital Anxiety and Depression Scale. Acta Psychiatrica Scandinavica, 67, 361-370. http://dx.doi.org/10.1111/j.1600-0447.1983.tb09716.x
|
[81]
|
Montgomery, S.A. and Asberg, M. (1979) A New Depression Scale Designed to Be Sensitive to Change. British Journal of Psychiatry, 134, 382-389. http://dx.doi.org/10.1192/bjp.134.4.382
|
[82]
|
Lezak, M.D. (1995) Neuropsychological Assessment. 3rd Edition, Oxford University Press, New York.
|
[83]
|
Muslimovic, D., Post, B., Speelman, J.D. and Schmand, B. (2005) Cognitive Profile of Patients with Newly Diagnosed Parkinson Disease. Neurology, 65, 1239-1245. http://dx.doi.org/10.1212/01.wnl.0000180516.69442.95
|
[84]
|
Folstein, M.F., Folstein, S.E. and McHugh, P.R. (1975) “Mini-Mental State”. A Practical Method for Grading the Cognitive State of Patients for the Clinician. Journal of Psychiatric Research, 12, 189-198. http://dx.doi.org/10.1016/0022-3956(75)90026-6
|
[85]
|
Marinus, J., Visser, M., Verwey, N.A., et al. (2003) Assessment of Cognition in Parkinson’s Disease. Neurology, 61, 1222-1228. http://dx.doi.org/10.1212/01.WNL.0000091864.39702.1C
|
[86]
|
Friedberg, G., Zoldan, J., Weizman, A. and Melamed, E. (1998) Parkinson Psychosis Rating Scale: A Practical Instrument for Grading Psychosis in Parkinson’s Disease. Clinical Neuropharmacology, 21, 280-284.
|
[87]
|
Gilleard, C.J. and Pattie, A.H. (1977) The Stockton Geriatric Rating Scale: A Shortened Version with British Normative Data. British Journal of Psychiatry, 131, 90-94. http://dx.doi.org/10.1192/bjp.131.1.90
|
[88]
|
Chappell, N.L. and Reid, R.C. (2002) Burden and Well-Being among Caregivers: Examining the Distinction. Gerontologist, 42, 772-780. http://dx.doi.org/10.1093/geront/42.6.772
|
[89]
|
Roth, R.M., Isquith, P.K. and Gioia, G.A. (2005) BRIEF—A: Behavior Rating Inventory of Executive Function— Adult Version. Psychological Assessment Resources, Lutz, FL.
|
[90]
|
Reisberg, B., Ferris, S.H., Franssen, E., et al. (1989) Clinical Features of a Neuropathologically Verified Familial Alzheimer’s Cohort with Onset in the Fourth Decade: Comparison with Senile Onset Alzheimer’s Disease and Etiopathogenic Implications. Progress in Clinical and Biological Research, 317, 43-54.
|
[91]
|
Chaudhuri, K.R., Yates, L. and Martinez-Martin, P. (2005) The Non-Motor Symptom Complex of Parkinson’s Disease: A Comprehensive Assessment Is Essential. Current Neurology and Neuroscience Reports, 5, 275-283. http://dx.doi.org/10.1007/s11910-005-0072-6
|
[92]
|
Peto, V., Jenkinson, C. and Fitzpatrick, R. (1998) PDQ-39: A Review of the Development, Validation and Application of a Parkinson’s Disease Quality of Life Questionnaire and Its Associated Measures. Journal of Neurology, 245, S10-S14. http://dx.doi.org/10.1007/pl00007730
|
[93]
|
The EuroQol Group (1990) EuroQol—A New Facility for the Measurement of Health-Related Quality of Life. Health Policy, 16, 199-208. http://dx.doi.org/10.1016/0168-8510(90)90421-9
|
[94]
|
Ware Jr., J., et al. (2002) User’s Manual for the SF-12v2® Health Survey 2002. Quality Metric Incorporated, Lincoln, RI.
|
[95]
|
Henrich, G. and Herschbach, P. (2000) Questions on Life Satisfaction (FLZM)—A Short Questionnaire for Assessing Subjective Quality of Life. European Journal of Psychological Assessment, 16, 150-159. http://dx.doi.org/10.1027//1015-5759.16.3.150
|
[96]
|
Pinquart, M. and Sorensen, S. (2006) Gender Differences in Caregiver Stressors, Social Resources, and Health: An Updated Meta-Analysis. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 61, 33-45. http://dx.doi.org/10.1093/geronb/61.1.P33
|
[97]
|
Carbonneau, H., Caron, C. and Desrosiers, J. (2010) Development of a Conceptual Framework of Positive Aspects of Caregiving in Dementia. Dementia, 9, 327-353. http://dx.doi.org/10.1177/1471301210375316
|
[98]
|
Den Oudsten, B.L., Van Heck, G.L. and De Vries, J. (2007) Quality of Life and Related Concepts in Parkinson’s Disease: A Systematic Review. Movement Disorders, 22, 1528-1537. http://dx.doi.org/10.1002/mds.21567
|
[99]
|
Schrag, A., Barone, P., Brown, R.G., et al. (2007) Depression Rating Scales in Parkinson’s Disease: Critique and Recommendations. Movement Disorders, 22, 1077-1092. http://dx.doi.org/10.1002/mds.21333
|
[100]
|
Friedman, J.H., Alves, G., Hagell, P., et al. (2010) Fatigue Rating Scales Critique and Recommendations by the Movement Disorders Society Task Force on Rating Scales for Parkinson’s Disease. Movement Disorders, 25, 805-822. http://dx.doi.org/10.1002/mds.22989
|
[101]
|
Fernandez, H.H., Aarsland, D., Fénelon, G., et al. (2008) Scales to Assess Psychosis in Parkinson’s Disease: Critique and Recommendations. Movement Disorders, 23, 484-500. http://dx.doi.org/10.1002/mds.21875
|
[102]
|
Martinez-Martin, P., Jeukens-Visser, M., Lyons, K.E., et al. (2011) Health-Related Quality-of-Life Scales in Parkinson’s Disease: Critique and Recommendations. Movement Disorders, 26, 2371-2380. http://dx.doi.org/10.1002/mds.23834
|
[103]
|
Bedard, M., Pedlar, D., Martin, N.J., et al. (2000) Burden in Caregivers of Cognitively Impaired Older Adults Living in the Community: Methodological Issues and Determinants. International Psychogeriatrics, 12, 307-332. http://dx.doi.org/10.1017/S1041610200006426
|
[104]
|
Nolan, M.R., Grant, G. and Ellis, N.C. (1990) Stress Is in the Eye of the Beholder: Reconceptualizing the Measurement of Carer Burden. Journal of Advanced Nursing, 15, 544-555. http://dx.doi.org/10.1111/j.1365-2648.1990.tb01853.x
|
[105]
|
Pallant, J. (2007) SPSS Survival Manual: A Step by Step Guide to Data Analysing Using SPSS for Windows. 3rd Edition, Open University Press, Maidenhead and McGraw-Hill, New York.
|