The happy celiac: An oxymoron or a possibility?

Maurizio Esposito

Department of Haman and Sport Sciences, University of Cassino, Cassino, Italy.

DOI: 10.4236/health.2012.45041                

Abstract

Background: Several international studies, confirmed in Italy too, show a hard presence of socio-relational problems inside the celiac population. Methods: Qualitative study involving persons with celiac disease and their families. 25 individual semi-structured interviews were conducted in three Italian regions. Results: Problems of management of social life for celiac persons are experienced, specially in the fields of: school, work, travels and life outside the home. Conclusion: Chronic illness is a “biographical disruption” [1] and the whole society has to be invested to fight the burden of celiac persons in their possibility of access to public life.

Keywords

Celiac; Social; Quality of Life; Qualitative; Chronic Illness

Conflicts of Interest

The authors declare no conflicts of interest.

References

[1]	Bury, M.R. (1982) Chronic illness as biographical disrupttion. Sociology of Health and Illness, 4, 167-182. doi:10.1111/1467-9566.ep11339939
[2]	Apfeldorfer, G. (1995) Mangio dunque sono: Obesità e anomalie del comportamento alimentare. Marsilio, Venezia.
[3]	Esposito, M. (2008) Introduzione. In: Battisti, F.M. and Esposito, M. Eds., Cronicità e dimensioni socio-relazionali. Salute e Società, FrancoAngeli, Milano.
[4]	Strauss, A., et al. (1975) Chronic illness and quality of life. Mosby, St. Louis.
[5]	Green, P.H.R. et al. (2001) Characteristics of adult celiac disease in the USA results of a national survey. American Journal of Gastroenterology, 96, 126-131.
[6]	Lee, A. and Newman, J.M. (2003) Celiac diet: Its impact on quality of life. Journal of the American Dietetic Association, 103, 1533-1535. doi:10.1016/j.jada.2003.08.027
[7]	Karajeh, M.A., et al. (2004) Are patients with celiac disease socially restricted by a gluten free diet? Gut, 53, pp. 4-5.
[8]	Cinquetti, et al. (1997) L’adolescente e la malattia celiaca. Pediatria Medica e Chirurgica, 19, pp. 397-399.
[9]	Olsson, C. et al. (2009) Food that makes you different. The stigma experienced by adolescents with celiac disease. Qualitative Health Research, 19, 976-984. doi:10.1177/1049732309338722
[10]	Sverker, A., Hensing, G. and Hallert, C. (2005) “Controlled by food”: Lived experiences of celiac disease. Journal of Human Nutrition and Dietetics, 18, 171-180. doi:10.1111/j.1365-277X.2005.00591.x
[11]	Hallert, C., et al. (2002) Living with celiac disease: Controlled study of the burden of illness. Scandinavian Journal of Gastroenterology, 37, 39-42. doi:10.1080/003655202753387338
[12]	Hallert, C., et al. (2003) Perceptions of health-related quality of life of men and women living with celiac disease. Scandinavian Journal of Caring Sciences, 17, 301- 307. doi:10.1046/j.1471-6712.2003.00228.x
[13]	Roos, S., et al. (2006) Psychosocial well-being of adult coeliac patients treated for ten years. Digestive and Liver Disease, 38, 177-180. doi:10.1016/j.dld.2006.01.004
[14]	Gregory, S. (2005) Living with chronic illness in the family setting. Sociology of Health and Illness, 27, 372-392. doi:10.1111/j.1467-9566.2005.00447.x
[15]	Giddens, A. (1991) Modernity and self-identity. Self and society in the late modern age. Polity, Cambridge.
[16]	Sverker, A., et al. (2007) Sharing life with a gluten-intolerant person: the perspective of close relatives. Journal of Human Nutrition and Dietetics, 20, 412-422. doi:10.1111/j.1365-277X.2007.00815.x
[17]	Cipolla, C. (1997) Epistemologia della tolleranza. Franco-Angeli, Milano.
[18]	Sverker, A., et al. (2009) ‘I lose all these hours…’ Exploring gender and consequences of dilemmas experienced in everyday life with celiac disease. Scandinavian Journal of Caring Science, 23, 342-352. doi:10.1111/j.1471-6712.2008.00628.x
[19]	Fasano, A. (2005) Clinical presentation of celiac disease in paediatric population. Gastroenterology, 128, 68-73. doi:10.1053/j.gastro.2005.02.015
[20]	Hallert, C., et al. (1998) Quality of life of adult celiac patients treated for ten years. Scandinavian Journal of Gastroenterology, 33, 933-938.
[21]	Corposanto, C. (2008) Celiachia e capitale sociale. Uno sguardo sociologico sulle intolleranze alimentari. In: Battisti, F.M. and Esposito, M. Eds., Cronicità e dimensioni socio-relazionali. Salute e Società, Anno.
[22]	Bolano, M.A. and Martin, A.A. (1996) La prevencion como estrategia de abordaje en una enfermedad cronica: La enfermedad celiaca. Pediatrika, 16, 33-37.