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2024
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Anything is better than nothing’: exploring attitudes towards novel therapies in leukodystrophy clinical trials
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2020
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Special considerations for clinical trials in fibrodysplasia ossificans progressiva (FOP)
British Journal of Clinical Pharmacology,
2019
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Treatment preference and recruitment to pediatric RCTs: A systematic review
Contemporary Clinical Trials Communications,
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Barriers and facilitators to clinical trial participation among parents of children with pediatric neuromuscular disorders
Clinical Trials,
2018
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Ethical considerations of researchers conducting pediatric clinical drug trials: a qualitative survey in two Belgian university children’s hospitals
European Journal of Pediatrics,
2018
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An Evidence‐Based, Community‐Engaged Approach to Develop an Interactive Deliberation Tool for Pediatric Neuromuscular Trials
Journal of Genetic Counseling,
2018
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“Watching time tick by…”: Decision making for Duchenne muscular dystrophy trials
Contemporary Clinical Trials,
2016
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Pediatric Research,
2015
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Clinical Trial Decision Making in Pediatric Sickle Cell Disease
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