Author(s)

Rie Wakimizu^1*, Keiko Yamaguchi², Hiroshi Fujioka³

¹Department of Child Health Care Nursing, Division of Health Innovation and Nursing, Faculty of Medicine, Uni-versity of Tsukuba, Tsukuba City, Japan.
²Department of Nursing Science, Graduate school of Comprehensive Human Sciences, University of Tsukuba, Tsukuba City, Japan.
³Department of Nursing, Faculty of Health Sciences, Tsukuba International University, Tsuchiura City, Japan.

The number of children with Severe Motor and Intellectual Disabilities (SMID) receiving medical treatment/recovering at home is rising yearly. Although benefits of this care are emphasized, the stress and duties of family members in the household are extremely great, especially because Japan is becoming a society of nuclear families. In this study, we described the lifestyles of nuclear families providing in-home medical care for children with SMID, focusing on family members’ roles. Roles of mothers, fathers, and siblings of children with SMID were summarized from semi-structured inter-views. As a result, for “the roles of each family member living with a child with SMID”, mothers had five roles, fathers seven, and siblings five. For “the hopes of each family member living with a child with SMID”, parents desired the whole family collaboration in care for children with SMID, and as caregivers, parents’ common thoughts included wanting siblings in order to help care for the child with SMID and wanting siblings to treasure their own lives. Siblings wanted their mother to have some time for rest and expected their fathers to have two main roles. They also expected their grandparents and other siblings to fulfill roles.

Children with Severe Motor and Intellectual Disabilities (SMID), Family Life, Interfamilial Roles, Family Empowerment, Japan

Wakimizu, R. , Yamaguchi, K. and Fujioka, H. (2016) Roles and Hopes of Family Members Living with SMID Children in Japan. Health, 8, 787-799. doi: 10.4236/health.2016.89083.