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Taruscio, D., Mollo, E., Gainotti, S., De la Paz, M.P., Bianchi, F. and Vittozzi, L. (2014) The EPIRARE Proposal of a Set of Indicators and Common Data Elements for the European Platform for Rare Disease Registration. Archives of Public Health, 72, 35-42.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4210567/
https://doi.org/10.1186/2049-3258-72-35

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